During our 18-month ultrasound, the technician noticed that something was different about our Patrick’s heart. Through follow-up ultrasounds and fetal echos, we learned that Patrick has a congenital heart defect known as Ebstein’s Anomaly. Once Patrick finally arrived, the doctors decided that, with some monitoring and medication, Patrick’s heart would probably function well enough to allow him to grow a bit bigger before surgery would be absolutely necessary. Patrick grew well over the next few months, but in November 2010 tests showed that his heart was beginning to fail and we began preparing for surgery.
On January 18, 2011 Patrick had open-heart surgery (his first, and hopefully his last) to repair his right tricuspid valve, partially close his ASD, and perform a bidirectional Glenn procedure. There were a few issues during recovery, but by February 2 Patrick was discharged and has done very well at home. He is now pinker because of better oxygen saturation, and he is able to cry a lot longer than he was able to before surgery.
This blog is a place for us to share updates with our family and friends. It is also a therapeutic tool and a way for us to record some of the vast amounts of information we have been receiving. AND photos, of course!
We can’t thank you enough for your love, support, and prayers!
You can now watch our video, Patrick Begins, a video + photo montage of Patrick’s stay at St. Joseph’s hospital.