Patrick was finally discharged last Wednesday, Feb 2nd. Happy Groundhog’s Day to us!
On a side note, Patrick’s Aunt Aubrey also came home from Brazil that day–she had been serving as a missionary for over a year and a half. A good day all around.
Here he is with Dr. Lane, one of the Pediatric Intensivists, and Dr. Nigro, Patrick’s heart surgeon:
Ready to roll out:
Patrick rebounded really quickly with the feeding tube (NG tube) in the hospital–we were able to keep his belly full. Unfortunately, it was a bit TOO full most of the time and he had a lot of trouble keeping the food down. I don’t think he like the Portagen any better in reverse…
I had to put the tube in to prove that we could handle it at home in order to get discharged. Here I am using my lovely plastic stethoscope to make sure the tube is in the right place. If I could hear air “popping” into his stomach when I pushed it through the tube then we were good to go.
We were pretty excited when one of the Nurse Practitioners suggested that we try Enfaport, another non-fat formula. It is new or not-as-common or something like that. Patrick likes it much better and although he came home with a feeding tube–it came out the next day and we have not needed to put it back in. He is eating on his own, and getting closer and closer to the amount of formula they would like him to have each day (about 25-28 ounces).
We are also allowed to give him breastmilk now as long as we remove all of the fat. We thought Patrick would be delighted to have breastmilk again–but he didn’t really react much. Maybe it isn’t as delish without the fat? I can’t blame him. At any rate, he likes the Enfaport just fine so we are sticking with that to play it safe. After this month his lymphatic system should be well enough to go back to our regularly scheduled feeding program of the fatty-fat milk.
Patrick is thriving at home and we are so grateful for all of the prayers and support that got him (and us) through this adventure. I can’t even tell you how nice it was to have people feed us, visit us, write/comment, and I am still amazed by Patrick’s fantastic grandmas who helped care for him in the hospital. Thanks to them I was able to spend some nights at home in my own bed, leaving Patrick in good hands. He is one loved little dude!
Patrick’s bedtime schedule is still a little out of whack from the hospital, but that is a small price to pay for his heart to be working so much better ♥.