Leaky

I’ve never seen Patrick SO happy to be back home, but after all of his tests at the Heart Center yesterday afternoon Patrick looked like he could’ve kissed the living room floor upon returning to familiar surroundings. One of his favorite things to watch is the ceiling fan, and he was full of smiles for Mr. Fan. Next he was thrilled to sit in his swing again, and he sat and talked to the little lambs on the swing mobile and smiled at his own reflection in the mirror above the swing. He sure seems to like the handsome dude that looks back at him!

Although he was pretty unhappy about being held down for a chest x-ray, echo, and EKG–not to mention having blood drawn from his little arm–for the most part Patrick was smiley and friendly to the doctors and nurses. Even while the cardiologists were giving us some serious news, Patrick grinned and grinned at Doctor Rhee. Braden and I were not quite so cheerful about the doctors’ report that Patrick’s valve has gotten very, very leaky. Right now the x-ray shows that his heart has not become much more enlarged, but the echo showed that his tricuspid valve is allowing much more blood to leak back into the atrium. His heart is working SUPER hard, and it is only a matter of time before his atrium becomes so enlarged that his heart fails.

Fortunately, Patrick has been eating well and gaining weight, because it looks like the doctors will need to intervene earlier than we had planned. The bloodwork they ordered will tell us how far into heart failure he is, and in the next couple of weeks they will probably do a heart catheter to get a better look at his valve. On Tuesdays the doctors all meet to discuss certain cases and Patrick is on the docket for next Tuesday. Hopefully they’ll have a plan for us after that. Beth indicated that once they decide that he needs surgery, it will probably be about a month before the procedure happens.

For now we are watching for signs of heart failure like vomiting, appetite issues, or labored breathing. Our travel plans are on hold and we are to continue our germaphobic precautions. Airplane rides are definitely out of the question, and even road tripping may be kiboshed so that we stay close to Patrick’s medical team.

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6 thoughts on “Leaky

  1. Right after we spoke this morning, I took Isaiah to go for my morning walk. On the way to Judy’s, I heard these words, and they were very consoling:

    Come unto Jesus; He’ll surely hear you,
    If you in meekness plead for his love.
    Oh, know you not that angels are near you
    From brightest mansions above?

  2. Poor insufficient right atrioventricular valve 😦 Our hearts hurt for your heart.

    Such a handsome little bottom! I love the picture.

    We love you guys, our prayers are with you. And soon we will be with you, too! (For a little while.)

  3. What a little fighter! It’s tough to go back and forth all the time with how much care he’ll need. I’ll pray for you.

    Where were you going to travel to?

  4. You are doing such a great job! You know that Footprints poem… test it out, lean on the Lord. He will ALWAYS be there to support you. I love you!!

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