Here I am getting more rotund, these were taken this morning right before we visited St. Joe’s again:
Our activity of the day was to sit down with Dr. Nigro (\nye-grow\) in order to get to know him and play 20 Questions. I think we got really close to 20 Questions–but they didn’t give us a prize or anything…Bummer. Dr. Nigro has extensive experience handling similar cases of Ebstein’s Anomaly with successful outcomes. The only fatalaty he has seen was a result of an unrelated illness, and not from the surgery itself.
Dr. Nigro was very encouraging. He talked about the range of severity of Ebstein’s in babies like ours, a spectrum that goes from the severe end to the mild end. At the mild end the babies seem like any other baby when they are born (on the outside). Dr. Nigro feels that Pedro will probably be closer to the mild end and he is hopeful that surgery won’t be necessary right away. He compared Pedro to a little girl who was born with a similar case of Ebstein’s and she just barely had her first surgery (and they hope her only surgery) at about 17 months. Compared to surgery as a newborn, surgery after the first year sounds much better.
Dr. Nigro also feels that the Fontan procedure , where the plumbing of the heart is re-routed to skip the faulty valve, will not be needed for Pedro. He seems hopeful that Pedro’s leaky valve will be repairable. Whether or not it takes multiple surgeries will depend on how early surgery is required and on how well Pedro does with it.
All around, we enjoyed meeting Dr. Nigro–especially because in addition to being capable and professional, he has a good sense of humor. We had read his bio beforehand and knew that he had done his residencies at USC. So, of course, Braden’s first question was sports related–and Dr. Nigro just ran with it. Is humor a basis for selecting a hospital and a surgeon? Nope.com. But it’s nice to feel a connection with them anyway.